It's been crazy busy here at home between birthday celebrations (our older daughter turned 4!!); sickness including a bout with Scarlet fever my younger son and Alyssa's 5K preparation; time has been well...limited.
Shortly after my last update I did get some news on baby Ritzman that she was born and remained in the hospital on supported breathing. upon opening my email this evening I find yet another update: Melanie and baby Ritzman are home! Discharged yesterday, the baby is on an apnea monitor and is being assisted with a NG tube for her nutrition. Praise God! Mike and Melanie's baby girl was born on the 23rd of February, so she will be celebrating her 1st month birth celebration at home. How sweet for her and her family! I don't think the Ritzman's blog, but as I am given permission I will post updates on Baby Olivia's condition.
Sadly after my last post baby Caleb's mom went into labor and Caleb was born into the arms of Jesus. I believe he was born at 35 weeks possibly 36. I trust that Calebs family would appreciate any prayers on their behalf. I know I hadn't given much information about them as I was just meeting them myself; however in my brief contact with Caleb's mom; they were ready to ride the T18 ride. In other words that were very excited to meet and parent this little one.
Every life is precious. Every child is a child with hope.
I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey.
Showing posts with label Baby Ritzman. Show all posts
Showing posts with label Baby Ritzman. Show all posts
Sunday, March 21, 2010
Friday, February 26, 2010
Updates
Many of you have inquired about The Ritzman family. Unfortunately I don't have an update for you. The last contact I had with the family, regarding the baby was via a general mass e-mail indicating that Melanie would be heading to the hospital on 2/23/10 to deliver the baby. I trust that the Ritzman's know that prayers continue to be said on their behalf and I hope (as I know you all do) that they will be kind enough to provide an update when able. For those of you on this T18 journey you know how breath taking those first few moments and days can be...so remain hopeful for this little one.
Another local (to me) baby diagnosed in utero with T18 is expected in the next few weeks. I hope to get permisson from his parents to share thier story as well. Until then prayers for Baby Caleb's family would be appreciated.
Another neat event coming up is our friend MaCari will be turning 2!!! Macari's mom came across Alyssa's blog almost a year ago and we've kept in contact. Somewhere in this blog there are pictures of this adorable little girl. I've got to ask her mom for more. Macari had some sickness over the winter but over all is doing really well. So take that T18!! Macari has full T18 too! Her big day is March 10th!!
Alyssa has celebrated her 19th month on this earth Feb. 15th! She continues to do well overall. We are working out some kinks with the Bi-PAP machine. If anyone knows where we can get nasal cannula's that would be compatible with the VPAP III by Resmed~ DO TELL! The gel mask is really difficult for Alyssa. I'll dedicate more time later to go into details, short-n-sweet we would love to use nasal prongs. We have heard of Nasal Air II for kids but the smallest it goes to is for a 40lb child. So we will continue to look..Otherwise Miss Alyssa is 20lbs 9 ounces and 28" long. Our little star!
Below are some older video's of Alyssa when she was between 14-17 months old. Just wanted to share them.
just listen to her!
Another local (to me) baby diagnosed in utero with T18 is expected in the next few weeks. I hope to get permisson from his parents to share thier story as well. Until then prayers for Baby Caleb's family would be appreciated.
Another neat event coming up is our friend MaCari will be turning 2!!! Macari's mom came across Alyssa's blog almost a year ago and we've kept in contact. Somewhere in this blog there are pictures of this adorable little girl. I've got to ask her mom for more. Macari had some sickness over the winter but over all is doing really well. So take that T18!! Macari has full T18 too! Her big day is March 10th!!
Alyssa has celebrated her 19th month on this earth Feb. 15th! She continues to do well overall. We are working out some kinks with the Bi-PAP machine. If anyone knows where we can get nasal cannula's that would be compatible with the VPAP III by Resmed~ DO TELL! The gel mask is really difficult for Alyssa. I'll dedicate more time later to go into details, short-n-sweet we would love to use nasal prongs. We have heard of Nasal Air II for kids but the smallest it goes to is for a 40lb child. So we will continue to look..Otherwise Miss Alyssa is 20lbs 9 ounces and 28" long. Our little star!
Below are some older video's of Alyssa when she was between 14-17 months old. Just wanted to share them.
we continue to work on feeding orally!!
just listen to her!
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