Friday, February 26, 2010

Updates

Many of you have inquired about The Ritzman family. Unfortunately I don't have an update for you. The last contact I had with the family, regarding the baby was via a general mass e-mail indicating that Melanie would be heading to the hospital on 2/23/10 to deliver the baby. I trust that the Ritzman's know that prayers continue to be said on their behalf and I hope (as I know you all do) that they will be kind enough to provide an update when able. For those of you on this T18 journey you know how breath taking those first few moments and days can be...so remain hopeful for this little one.

Another local (to me) baby diagnosed in utero with T18 is expected in the next few weeks. I hope to get permisson from his parents to share thier story as well. Until then prayers for Baby Caleb's family would be appreciated.

Another neat event coming up is our friend MaCari will be turning 2!!! Macari's mom came across Alyssa's blog almost a year ago and we've kept in contact. Somewhere in this blog there are pictures of this adorable little girl. I've got to ask her mom for more. Macari had some sickness over the winter but over all is doing really well. So take that T18!! Macari has full T18 too! Her big day is March 10th!!

Alyssa has celebrated her 19th month on this earth Feb. 15th! She continues to do well overall. We are working out some kinks with the Bi-PAP machine. If anyone knows where we can get nasal cannula's that would be compatible with the VPAP III by Resmed~ DO TELL! The gel mask is really difficult for Alyssa. I'll dedicate more time later to go into details, short-n-sweet we would love to use nasal prongs. We have heard of Nasal Air II for kids but the smallest it goes to is for a 40lb child. So we will continue to look..Otherwise Miss Alyssa is 20lbs 9 ounces and 28" long. Our little star!

Below are some older video's of Alyssa when she was between 14-17 months old. Just wanted to share them.


video we continue to work on feeding orally!!


video just listen to her!

5 comments:

  1. She is telling you some great story :)

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  2. thanks for dropping in on Vera and for the birthday wishes! Alyssa is growing so well, she's so chubby! great work on the oral feeding...it's great to hear her babbling away! Our children continue to amaze us don't they?

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  3. understand your difficulties with the gel mask as compared to nasal prongs. Vera didn't like the gel mask either. How about this? My friend just got a new mask for their bipap machine...don't know if it's compatible with your resmed machine though.

    http://myprincessdanielle.blogspot.com/2010/02/danielles-new-mask.html

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  4. She is just so beautiful. And 20 lbs??! Mallorie is 3, and less than that (right now, because of a recent hospitalization) ... 20 is about where she likes to stay. Way to go, Alyssa!

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  5. loved listening to her talking. so did kaiya! she stopped her noise parade to listen to alyssa. i might have to record it and play it whenever my monster gets too loud to handle!

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