He has blessed our family with this trial which has caused us to grow in so many ways and forge a deeper understanding of His word and His place at the head of our table. God is sovereign and has pre-ordained all our days on this earth. I will praise HIM today and tomorrow...I will praise HIM if HE sees fit to call Alyssa home sooner than our hearts desire as I know HIS works are wonderful and that He does all to our benefit and to HIS glory. My hope is that Alyssa's life and in turn our actions will bring glory to God.
If you'd like to celebrate Alyssa's big day with us wear purple tomorrow. If you want send us a picture of you in your purple garb. We'd love it!
While this is a celebration for us; it is also a celebration for those families affected by Trisomy 18 as a "long term" survivor is a indication to doctors that "incompatible with life" statement/treatment is not an okay label for T18 babies. Life is beautiful and these lives are worth living! It is essential for the medical model to acknowledge that perfect is in the eye of the beholder and from my view Alyssa is just perfect.
This post is dedicated to : Gabriella, Magdelena, Meiko, Molly and Sophie..lives lived and called to glory