I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey.
Wednesday, October 8, 2008
RSV and Trisomy
Good news.. the RSV drug (synagist) was approved, the appeal worked! So it's covered 100%. Yeah! We do have a secondary insurance for Alyssa but there were problems in coordinating the benefits. It seems that all has been corrected and this should decrease some of our concerns. To my understanding Synagist is given in a seris of 5 shots each about 3,000,00 or 15,00.00 total! Smoking cows, that a costly drug!
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Hi Alyssa's mom,
ReplyDeleteKeep us posted on Alyssa's progress & beautiful photos.
Pray for her best of health.
Lots of Love : Mummy Pauline & "Baby Angel Rayvin - T18"
Malaysia