I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey.
Wednesday, May 26, 2010
Alyssa's feeling better and back to her old ways
Hard to believe it's only two months away. We continue to work hard at organizing and preparing for the run/walk. Really hoping that this event will help to make our local community more aware of Trisomy 18 and similar syndromes.
Alyssa is feeling much better! She is off supplemental oxygen during the day and has returned to her normal routine. Yea!! Lots of lessons learned with this bout with mild pneumonia~ hopefully illness like this will be few and far between. Thanks to all who wished her well, said prayers on her behalf, and encouraged me. The little princess is 22 months old!! Weehoo~~
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