If you'd like to see race day pictures and race finish times from Alyssa's 5K go to alyssasencouragers.vpweb.com The Hope for Alyssa domain is no longer available, so the aformentioned address will link you up to the site.
The race went so well and we are extremely thankful for all the support. It is hard to believe a month has passed already! So much planning went into it and bam it's over and done! We had a lot of fun and look forward to maybe doing it again for 2011. We had about 175 people in attendance and 106 race participants. Not bad for a 1st time event!!
So much more to share but will have to do it another time.
Thanks for stopping by and promise a better update sooner rather than later!!
I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey.
Tuesday, August 31, 2010
Thursday, July 15, 2010
HAPPY BIRTHDAY 2nd ALYSSA!! Random Pictures
This is Alyssa at her ENT appointment. Since her ear canals are so stenotic (small), her doctor has not been able to see her ear drum until using this method. Alyssa is strapped into a papoose for immobility. The doctor then uses a magnifier that is suspended from the ceiling to look through while using a tiny ear spoon (my term). It's the tool they typically use to look in the ear, but it has a super small tip. I know it looks painful but I'm certain it's just annoying. Especially when you can't move your arms to swat at the thing in your ear!! When the doctor sees wax, she using the trusty ole suction machine to slurp out the wax. This is the second time Alyssa has been through this and it was great in that we learned she has good functuioning ear drums. Now all we need is an audiology exam to determine what degree ( if any)
of hearing loss she has. Learning this information has been hard, but she seems to hear as she rocks out to music and will respond to her name.
of hearing loss she has. Learning this information has been hard, but she seems to hear as she rocks out to music and will respond to her name.
Couldn't flip this one! PC acting up!! this brought tears to my eyes though. We were able to trial Alyssa in a stander!! This is the supine stander which she looked great in and she loved it! Big girl standing!!
This is the prone stander. It was nice to see her up but she hyper-extended her head a bit. She still needs a little reminder to maintian a proprer head tilt. It was great to see her standing!!
This is the prone stander. It was nice to see her up but she hyper-extended her head a bit. She still needs a little reminder to maintian a proprer head tilt. It was great to see her standing!!
Happy Birthday Alyssa! She's in her new toy, an exersaucer! It was a little overwhelming for her. Hopefully i time it will grow on her. And then Alyssa tasting the waters of her bath. She loves to have the water sprinkeled near her nose.
Wow 8 days till Alyssa's 5K run/walk! Can't beleive it is nearly here!! I hope it goes well and that everyone enjoys not only the event but learning more about Trisomy 18!!
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