I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. (Psalm 139:14) Being grown in faith because of my daughters diagnosis of Trisomy 18, a rare genetic syndrome. This is my reality of loving Alyssa and the impact she makes in our family. I praise God for showing us His grace and revealing our human frailty throughout this journey.
Friday, March 6, 2009
To hear or not to hear that is the question
Alyssa had an unsedated ABR hearing exam recently. This is what it looks like...the third visit was the charm; she slept like an old lady!
Alyssa had moderate hearing loss, however this may change in time as she has very small ear canals. The loss isn't a major issue now as she hears us well because we're generally in close proximty of her. We'll follow things closely and in time she may need hearing aides or maybe not~time will tell.
Thursday, March 5, 2009
Working hard..a glimpse of OT and PT sessions
Alyssa and her OT Kris working on head control and neck strength. Alyssa getting some tummy time onthe ball. She likes this much better than floor tummy time.
Alyssa likes working on her big yellow ball. Bouncing while sitting up is one favorite things to do.
Alyssa sitting up with help from her OT Kris.
Alyssa loves her work outs. We have noticed her gaining better muscle tone and stability with each passing week. She's a hard working little lady!
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